How to Create a Dementia Care Binder for Organized Home Care?

Caring for a loved one with dementia can be very challenging. Having their medical information organized in one dementia care binder makes caregiving much easier. This vital organizational tool empowers families to provide attentive, informed care.

Elderly care Photo of elderly woman tells a story for the doctor Engage Dementia Patients stock pictures, royalty-free photos & images

Gather Important Documents for the Dementia Care Binder

Start by gathering key medical and legal paperwork for the dementia care binder. This includes:

  • Current medication list such as Aricept, Namenda, blood pressure medications  
  • Lab results from the past 1-2 years like A1C for diabetes or cholesterol panels
  • Radiology results like CT scans checking for strokes 
  • Cardiac test results such as echocardiograms and EKGs
  • Pathology reports from any biopsies 
  • Hospital discharge summaries from related stays like after pneumonia
  • Primary care visit notes about dementia symptoms and cognition
  • Specialist notes like from neurologists or psychiatrist
  • An advance directive, POLST form, living will

Also include basic info like allergies to medications, detailed medical conditions like Parkinson’s disease, and surgical history like pacemaker implantation or hip replacement. 

Organize the Dementia Care Binder

Get a 3-ring binder with tab dividers. Organize sections for:

  • Medications
  • Lab/Test Results
  • Radiology Results
  • Cardiac Testing 
  • Medical History  
  • Hospital Records
  • Doctor Visit Notes
  • Legal Documents   
  • Care Instructions

Use clear plastic sheet protectors to keep original documents neat, clean, and safe in the dementia care binder.

Add Care Instructions

Include any instructions for medical devices or daily care routines in the dementia care binder. For example:

  • How to use oxygen equipment 
  • Reminders for mobility exercises or stretches  
  • Detailed schedule for taking complex medications at different times
  • Techniques for dressing, bathing, eating
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Caregivers can quickly reference this vital info.

Maintain Updated Versions 

When new results or paperwork comes in for the dementia care binder, file them in the right section. Shred outdated versions. Keep a digital copy as a backup.

Bring the Dementia Care Binder to Appointments

Having this organized binder makes doctor visits more productive. Doctors can review past records and make informed decisions for dementia care. You don’t have to scramble for paperwork or remember care details.

Share the Dementia Care Binder with Care Circle

Allow other family caregivers access to the binder contents. Or, share a digital copy so everyone stays updated. But be mindful of HIPAA privacy regulations.

Keeping a well-organized dementia care binder takes dedication, but pays off tremendously. This vital organization tool empowers families to provide attentive, informed care for their loved one with dementia.

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